We were so happy to be in our home, back with the rset of the men in my life. Ethan, Logan, and Landon were so happy that Evan was back home. Evan reached his 100th day post transplant on Christmas day! That is a very great day, they say the most critical time is the first 100 days after transplant.
We have had so many up and downs in this journey, you think you are taking all the right steps in the right directions, then BOOM, your taking another step back. On Jan. 11th, Evan was put back in the hospital for a fever. We knew when you came in with fever they admit you for at least 48 hours, so we were hoping thats all it would be. Well, it never seems to turn out that way, I ended up with pnuemonia, I was in the hospital for another 5 weeks. Ethan, my oldest, took us being back in the hospital really rough this time, he would call me every night in tears, begging me to come home. This is one of the toughest parts of this, I have four boys that I adore, but I have one that needs me more.
We spent our days in the hospital with PT, speech and OT therapy's, playing, and sleeping. It is hard to explain living in a hospital, it is very emtionaly exhausting. Every day you wake up praying that he doesn't get another fever, that his oxygen would go up, that he will stop coughing. There have been days when all I do is question God, even when I know He is taking care of him. I guess that's just our human nature.
Evan was finally released from the hospital on Feb. 16th..............
Saturday, May 22, 2010
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